CHARGE Syndrome

In March of this year, Cedie was diagnosed with CHARGE Syndrome.
CHARGE is an acronym. C= Coloboma> H= Heart Defects> A= Atresia or Stinosis of the Choanae> R= Retardation of Growth> G= Genetal Defects> E= Ear Anomolies.
Cedie has coloboma in the back of her eyes (luckily it doesn't affect her vision at this point), she has heart defects, stinosis of the choanae, and the ear anomolies is debateable (genetist thinks she has them, we are not convinced).
To learn more about CHARGE visit: http://www.chargesyndrome.org/about-charge.asp