Cedie Lynn Mock's Blog

Cedie Lynn was born on 6/16/05 in Memphis, TN. She arrived 6 wks early. Cedie spent the first 11 & 1/2 months in the hospital. Although she endured many surgeries and spent 2/3 of her life in hospitals, she was a very happy, beautiful little girl who was full of love and who was loved by everyone who met her in person and online. She now watches over all of us as our own little angel.

Tuesday, April 04, 2006

CHARGE Syndrome

In March of this year, Cedie was diagnosed with CHARGE Syndrome.
CHARGE is an acronym. C= Coloboma> H= Heart Defects> A= Atresia or Stinosis of the Choanae> R= Retardation of Growth> G= Genetal Defects> E= Ear Anomolies.
Cedie has coloboma in the back of her eyes (luckily it doesn't affect her vision at this point), she has heart defects, stinosis of the choanae, and the ear anomolies is debateable (genetist thinks she has them, we are not convinced).
To learn more about CHARGE visit: http://www.chargesyndrome.org/about-charge.asp


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