Thursday, 4/6/06 (Cardio Consult)

Cedie had a rough start to her day. She was inconsolable from 7am to 10am. Her teeth were really bothering her. They did a chest x-ray and it looked good. They changed her trach in case she had a plug but that didn't help either. They took her off CPAP and put her back on her vent rate. I stayed with her all day to try to help keep her calm. They are going to "let her rest" by keeping her on the vent for 24 hrs. If her blood gas numbers are better tomorrow morning, they will let her resume CPAP.

I met with her new cardiologist this afternoon. He was brought in to review all of Cedie's records and determine if she would benefit from having a cardiac cath done. So, after reviewing all of her records, he thinks she would benefit from a cardiac cath as well as a heart biopsy. It will tell us why her heart is the way it is (thick left ventricle + heart rate issues) so that they can treat it more specifically. They will take readings on the pressures in her heart as well as the oxygen levels. We discussed all the risks as well. A big concern for us is her history with being sedated. He said he would address these concerns with her other doctors as well as the anesthesiologists. We will meet again before the procedure. We are looking at doing this the week after Easter.