Vent Update
We put Cedie on a PEEP of 4 today! This was our goal since our last pulmonology clinic. She has handled the dwindling PEEP like a champ!
She has not had to be on a breathing rate since 10/31. I can't remember the last time we have had to use any O2 (I think it was when we went to the ER last).
Her sleep apnea has gotten much better. In its place, however, she has these random bouts of her O2 sats dropping below 88 and then popping right back up to 98 or 99. Not sure what that's all about but we're (the nurses and I) not too worried.
It is so amazing how great she is doing. It is very heart warming to think that we are just moments away from our goal- being off the vent! We will go back to pulmonolgy clinic on 12/18.
When she got the trach placed back on 9/2/05, we were told she would only need the vent for 24-48 hours. Looks like they were off by only 15 to 16 months :-)
***Earlier, I was reading an article about one of Cedie's fellow Chargers named Alex (http://www.mailtribune.com/archive/2006/1130/local/stories/save_a_baby.htm). He just went through an ordeal like Cedie did back in August 2005. The article was so hard to read and it brought back terrible memories. However, it helps to remind me how much the vent (& trach) have helped Cedie through this year by preventing (for the most part) an episode like this from happening to her again. - Please keep Alex and his family along with all of the other amazing CHARGERS who have/ have had to fight similar fights in your prayers.
She has not had to be on a breathing rate since 10/31. I can't remember the last time we have had to use any O2 (I think it was when we went to the ER last).
Her sleep apnea has gotten much better. In its place, however, she has these random bouts of her O2 sats dropping below 88 and then popping right back up to 98 or 99. Not sure what that's all about but we're (the nurses and I) not too worried.
It is so amazing how great she is doing. It is very heart warming to think that we are just moments away from our goal- being off the vent! We will go back to pulmonolgy clinic on 12/18.
When she got the trach placed back on 9/2/05, we were told she would only need the vent for 24-48 hours. Looks like they were off by only 15 to 16 months :-)
***Earlier, I was reading an article about one of Cedie's fellow Chargers named Alex (http://www.mailtribune.com/archive/2006/1130/local/stories/save_a_baby.htm). He just went through an ordeal like Cedie did back in August 2005. The article was so hard to read and it brought back terrible memories. However, it helps to remind me how much the vent (& trach) have helped Cedie through this year by preventing (for the most part) an episode like this from happening to her again. - Please keep Alex and his family along with all of the other amazing CHARGERS who have/ have had to fight similar fights in your prayers.
posted by Miss N Cedie @ Friday, December 01, 2006
1 Comments:
At 10:49 AM, December 01, 2006,
Crystal M. said…
That is so great!!!
I also read Alex's article and he is so lucky to have that angel around when he did.
Hugs!!
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