Cedie is Hospitalized

Cedie had a good night last night. When she awoke around 6am she was smiling. Then around 6:30 (after her feeding) something changed. She started fussing and could not be consoled. We tried everything but she couldn't calm down and her sats kept dropping. We changed her trach out, gave an extra treatment, tried putting her back on a rate, and giving her extra O2. Finally, I got her to sleep around 8:45. By 9 I had her rate back off and she had stopped retracting and breathing fast. However, each time I tried to turn the extra O2 back off, her stas would drop. Then we tried to give her 9am feeding at 9:30 and the distress started all over again.

So, I called her pediatrician and her pulmonologist. Both docs wanted us in the ER.

Once we got to the ER, they started another IV (at least it was on the 1st try this time). They did all the usual tests/cultures and an x-ray. Her x-ray looked fine. However, her RSV test came back positive.

We had to wait until 6:15 to get a room in the TCU (we arrived at the ER around 10:30...). Believe it or not, her old room was available. She was not thrilled. The moment we rolled her into the room she started crying.

Her pulmonologist said she would probably be in a week, maybe two. However, the admitting ICU/TCU doctor said that if she does well over the next 24 hours and her cultures come back clean, then we can go home Wed or Thurs. Lets all pray the ICU/TCU doctor is right. Christmas is 12 days away and we really want Cedie home this year!