Cedie Lynn Mock's Blog

Cedie Lynn was born on 6/16/05 in Memphis, TN. She arrived 6 wks early. Cedie spent the first 11 & 1/2 months in the hospital. Although she endured many surgeries and spent 2/3 of her life in hospitals, she was a very happy, beautiful little girl who was full of love and who was loved by everyone who met her in person and online. She now watches over all of us as our own little angel.

Monday, January 08, 2007

To All the Cedie Fans of the World

We want to thank all of you Cedie fans for sending your thoughts, wishes, and prayers. It meant so much to us to know how loved our daughter was and to know how many lives she touches in such a short time.

Thank you all who came to her funeral vistiation and/or services. It was overwhelming to see all of those who knew/loved our precious angel. I have never seen a turn out like that. Words can not express how conforting it was to have each and everyone of you there.


  • At 6:56 PM, May 09, 2006, Anonymous Anonymous said…

    Hey Cedie
    My Name is Kayla Wideman. I am 18 years old from Arlington, TN. Rigth now i am getting ready to graduate from Bolton High School. I am going to college to become a Neonatal Nurse!!! So one day i will be able to help babies just like you!!!! Keep Fighting!!!!! I Pray For You Everyday!!!!

  • At 10:54 PM, May 09, 2006, Blogger Amy and Max McKinley said…

    Hi sweet beautiful Cedie! My lil' guy is a CHARGEr too...and just one week younger than you! Just like Mighty Max, you are one determined and strong and VERY loved miracle! Keep up the good work...we want you home very, very, very soon! Much love to you and your family!!! :)

    (We live in Seattle, WA and met your mom via the CHARGE listserv...hopefully we will meet you someday! Looking forward to pinching those cheeks in person!!!)

  • At 5:49 AM, May 10, 2006, Anonymous shari said…

    I cannot wait to meet you!! Your mom was my baby girl when I lived in Memphis. I took her everywhere!
    You are a doll. God has big plans for you! He blessed you with wonderful parents and a loving extended family. You are in our prayers. You are such a strong little girl- your Great Grandy would be so proud of you.

    I live in Knoxville,Tn and hope to see you soon at your house in your own room :-)

  • At 6:04 AM, May 10, 2006, Blogger Robin said…

    Hey Cedie-
    This is Robin in Knoxville, TN. I am so proud of you and your parents for being so strong. You are an amazing little girl. Keep up the good work.

    Yesterday I dared to struggle. Today I dare to win. :)

  • At 10:03 PM, May 10, 2006, Blogger elle said…

    im ur nearly 21 ausie charge and her mummy better be careful or i might eat u up shes a beautiful woman i hope to meet u all one day i read aboutr u most days in here and the charge list your so brave get home soon your mummy knows ive had nine monhs in quite a frew times and i knwo soemone whos been in five years so dotn worry yoll beot befor u know it ellen

  • At 12:08 AM, May 11, 2006, Blogger anne said…

    HI Cedie,

    I learned about you from your friend Evan's website (who I learned about from Amy and Max's website -- you guys have something going here)!

    I cannot wait until you get to read about everything that you have been through in the last year... definitely something to be proud of!

    Anne B.

  • At 7:57 AM, May 11, 2006, Anonymous Anonymous said…

    Cedie, You are our first Great Granddaughter, and a beautiful girl you are. One day we will hold you and tell you just how wonderful you are. You are a fighter and we are so proud of you. We love you. Paw Paw & nommie

  • At 1:14 PM, May 11, 2006, Anonymous Anonymous said…

    "for He is our God and we are the people of His pasture, the flock UNDER HIS CARE."

    We think about you and pray for you everyday! Sonya, Alex, Hayley and Jaime

  • At 9:02 AM, May 12, 2006, Blogger kanda said…

    Cedie, you may not get outside to see the sun, but any room you are in radiates with with your sunny personality.

    Best wishes,
    Heather, Bellevue, WA

  • At 11:26 AM, May 12, 2006, Blogger MelMel said…

    Hey Cedie, this is your Aunt MelMel. I will be with you always and love you forever and always. You'll pull through anything. See you when you get home and on your first bday. Mel Memphis, TN 38111

  • At 1:35 PM, May 12, 2006, Anonymous Anonymous said…

    Hi Cedie, this is Aaron, Tara and Aubrey Whittaker. Sabena gave us the link to your site and we check in regularly to see how you are doing. You are beautiful little girl and we can't wait to meet you. Lots of love!
    Arlington, TN 38002

  • At 5:42 PM, May 13, 2006, Anonymous Sarah said…

    Hi Cedie,

    This is Sarah, Evan's mom. Our family has been out of town since Thursday, so we didn't realize you had had your lung biopsy until just now. We're so glad it was an uneventful procedure and are sending you big hugs to recover super fast!

    Love, The Storrs Family (Sarah, Jeremy, and Evan--9.5 mos CHARGEr)

  • At 7:28 PM, May 15, 2006, Blogger Mary Karr said…

    Hi Cedie,

    I am Mary Karr. I live in Charleston, WV. I learned about you from Mighty Max and Amy McKinley. I am sending you and your family hugs and prayers.

  • At 5:52 AM, May 16, 2006, Blogger Cheryl said…

    Hi Cedie :)
    My name is Cheryl Roberts and I live in Calhoun County, WV (also known as Sunny Cal :) I learned about your website from the very handsome, sweet and loveable "Mighty Max". I will continue to lift you and your family up in prayer. God is good always......Always God is good.

  • At 3:36 PM, May 16, 2006, Blogger Sarah Key Storrs said…

    Miss Cedie,

    I hear that you are on your way home now--we are so excited for you! As Neal Diamond sings, "Home is the most wonderful place of all"--keep your little heartlight burning strong.

    Love The Storrs Family
    (Sarah, Jeremy, and Evan ChaRGE)

  • At 4:57 PM, May 16, 2006, Anonymous Whitney Settles said…

    I have enjoyed working with Cedie so much! She is such a beautiful, growing little girl that I will never forget. She is so lucky to have such a loving family. Please let me know of anything I can ever do!

    Whitney Settles
    Memphis TN
    Cedie's Speech Therapist

  • At 8:02 PM, May 16, 2006, Anonymous Anonymous said…

    Amy Russo (mom to Ben, 9 month old with CHARGE)
    Cincinnati, Ohio USA

  • At 8:13 PM, May 16, 2006, Anonymous Anonymous said…

    You guys will get the hang of the home equipment in a snap! Ben has a trach, no vent... but still lots of equipment to learn. This is my one piece of advice... the equipment will become much easier over time. At first, we hated the home stuff - so much louder and baulkier than the hospital tools. And hauling them around with Ben was a nightmare at first. But trust me, over time you get use to it and it becomes second nature.
    Amy, Mike and Ben (9 month old CHARGEr)

  • At 9:17 AM, May 18, 2006, Anonymous Nana said…

    You are a blessing to this family. Many Saturdays I have picked up your Great Great Grandmother (Bubba) and brought her to visit you. She gave you the little pink doll you like to sleep with. For Mother's Day I gave her a picture of you sleeping with the doll and she said you are so precious. I happen to agree with her. Love always, Nana, G'Daddy and Bubba. (Cordova & Memphis, TN)

  • At 2:06 PM, May 18, 2006, Anonymous Aunt Rita said…

    I want you to know that I pray for her each night and thank God for making her a part of such a special and devoted family.
    I love you- Great Great Aunt Rita

  • At 8:11 AM, May 19, 2006, Anonymous Anonymous said…

    What a happy day for all the family. We are her Great Grandparents from St. Louis, Mo We love her and her family. Love Nommie

  • At 9:26 PM, May 28, 2006, Anonymous Anonymous said…

    Hi, I'm David Hobbs' wife Kim. I saw your card you gave him after the BBQ contest and decided to check out the site. She is so cute, I had no idea she had been through soo much!! David told me she was early and in the hospital, but not much else. Your family is and will continue to be in my families daily prayers. I will continue to keep up and if you need anything let us know!! Hopefully our girls can play together one day soon!!
    Kim Hobbs, Atoka, TN.

  • At 1:12 PM, May 31, 2006, Anonymous Anonymous said…

    Love Robin
    (Cousin in Knoxville)

  • At 11:12 PM, June 03, 2006, Anonymous Anonymous said…

    I am in awe! What a blessing to have you in our lives. My love to you ALL!

  • At 6:33 PM, June 07, 2006, Anonymous Anonymous said…

    Cedie,I am so glad I got to meet you! You are such a beautiful little girl who has been showered with prayers! I know God has something incredible for you!
    May God continue to give you and your family strength, Amy Pellegra

  • At 5:25 AM, June 08, 2006, Anonymous Anonymous said…

    Cedie, you are a strong and wonderful young lady. We are so glad that you are home and maybe Ryan and I will come visit you this summer. May God continue to watch over you and your family.

    Jeff, Michelle and Ryan Cox
    Arlington, TN

  • At 7:10 PM, June 14, 2006, Anonymous Anonymous said…

    Hi Cedie,

    It is great to see you doing so well! I miss you around the TCU but am happy to see you at home with your family.

    Tell mom not to worry too much over the numbers with your testing; you have some catching up to do after the past year and being at home is the best therapy to help you!

    Heather Liston
    Occupational Therapist
    LeBonheur Children's Medical Center

  • At 6:58 AM, June 23, 2006, Anonymous Anonymous said…

    Cedie, Hi. I am the RN over the private duty helping to care for you now that you are home. You are such an inspiration to all of us!You are truly a blessing from God. You have brought so much sunshine with your beautiful smile. You have wonderful parents and a precious brother who loves you dearly.I thank God every day for letting me meet you. Keep fighting!!!We are all praying for you and you are our inspiration every day!!!!We love you, Evelyn

  • At 5:52 PM, June 26, 2006, Anonymous Anonymous said…

    Hey Cedie! I am the director at the daycare that your mom worked at while she was pregnant with you and that Dylan attended while mom was pregnant. We all have been pulling for you and praying for you. I am so glad you are home now and doing well. I follow your blog every week. Praying for you and following your progress from the distance. In my heart...Rebecca DeWitt

  • At 7:50 AM, June 29, 2006, Anonymous Anonymous said…

    Hi Cedie! We love hearing all about you and how far you have come. We met your mom via the CHARGE listserv.

    Amy, Mike and Ben Russo (10 month old CHARGEr)
    Cincinnati, OHIO

  • At 3:21 PM, July 09, 2006, Anonymous Granny said…

    Hi Cedie,

    Just wanted you to know that we love you!!!

    Grandpa, Granny, & Aunt Becky

  • At 5:09 PM, July 19, 2006, Anonymous Anonymous said…

    Hi Cedie,
    This is Dalton Smith and I just wanted to say hi to a previous TCU roommate. I am glad that I (and my family) got to meet you in the TCU. I am home now like yourself and I am doing good.

    Dalton, Beaux, Teresa and Logan

  • At 10:21 AM, July 22, 2006, Blogger Lisa W. said…

    Hey Cedie,
    Lots of love from Saint John, New Brunswick Canada.

    We are proud parents of a little girl with CHARGE, Kennedy, who was born on January 27th 1998!
    Kennedy's Web Page...

  • At 11:47 AM, August 04, 2006, Anonymous cousin said…

    hey Cedie it is Elizabeth your cousin! your so cute.....i love you& your family! & i am so proud of you! You have fought so many battles! YOU GO GIRL :) I love the way you smile & i can't believe you can roll around now that is so cool! well i have been praying for you & i'll keep praying for you and i amso happy that your at home doing good.
    love always, Elizabeth Parrish

  • At 2:39 PM, August 28, 2006, Blogger Angela Begas said…

    Hi there Cedie, you are so gorgeous, I bet your beautiful cheeks get lots of kisses!!!
    with love from Stephanie Begas, fellow CHARGEr in Sydney, Australia.

  • At 1:40 PM, September 23, 2006, Anonymous Anonymous said…

    Hi Cedie,
    Uncle Jim & Aunt Becki made our first visit to meet you on September 23, 2006. You are such an angel! So delicate, you have the prettiest little curls, tiny little feet and what a sweetie! We love you little one.
    Uncle Jim and Aunt Becki

  • At 4:47 PM, September 26, 2006, Blogger kanda said…

    The McCrone family from Washington State sends lots of hugs and kisses!

  • At 3:58 PM, October 09, 2006, Blogger CrystalandEva said…

    Hello sweet little Cedie, Eva is my little CHARGEr and is now 18 months old. We live in Round Lake Beach Illinois USA. You are so cute and so sweet I just love the cheeks. Feel free to check out Eva's site with your mommy anytime and please sign her guest book so we can show her too when she is older. http://www.babysites.com/sites/crystalm1476/
    Crystal and Eva

  • At 8:12 PM, December 12, 2006, Anonymous Michelle said…


  • At 4:16 PM, December 19, 2006, Blogger giveme03 said…

    Hi Cedie,
    My name is Carolyn Nick and I live in Valley Grove, WV. I learned about you through Mighty Max and Incredible Amy McKinley. I have quietly been reading about you for sometime. You are so precious and a hard worker. Keep up the good work.
    Hugs to you,
    Carolyn from WV

  • At 9:02 AM, December 28, 2006, Blogger kellys said…

    Hi Cedie-
    My name is Maya (I am from WA state), I am 2 and 1/2 and I have CHARGE like you! You sound like one amazing kid! I am so GLAD you had such a healthy and fun Christmas. May you have a super New Year full of health and hopefully you will be crawling all over the place!

  • At 4:17 AM, January 01, 2007, Blogger Leslie, Arlin & Katie Kauffman said…

    Hi Cedie,

    We're glad you had such a great Christmas and have made so much progress lately! Keep up the great work, sweetie!

    Leslie Kauffman
    Mom to Katie, 4, CHARGE
    Mason, OH

  • At 1:11 PM, January 03, 2007, Blogger Shannon and Carey said…

    Hi Cedie. I have been following your site via Max's site. I have heard that you are very sick right now. I am saying a really big prayer for you right now. May you get well soon sweet baby. Our love to your and your family.
    Shannon and Carey Best
    Porter and Abigail
    Austin, Texas

  • At 2:43 PM, January 03, 2007, Blogger 44_wendy said…

    Hi Cedie,
    I've also been following your site via Maxwell's site. I'm so very sorry that your not feeling well right now. You are such a strong and beautiful girl and God has big plans for you in this world. I'll pray for you everyday. May the Lord bring you home strong and well to your Mommy and Daddy very soon.
    God Bless you!
    Wendy from Federal Way, WA

  • At 9:32 PM, January 03, 2007, Blogger Rebecca said…

    This comment has been removed by the author.

  • At 9:24 PM, January 06, 2007, Blogger Dylan (and Kristy) said…

    Hi Cedie,

    My name is Kristy Gillig and we live in Bellingham, Washington.

    We have been following your journey via Amy and Mighty Max. God Bless.


  • At 4:35 PM, January 29, 2007, Blogger Diane said…

    Precious Baby Girl. God loves you and so do all your wonderful friends.

    Diane and Alex
    We live in Charleston, WV


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