We Are Back Home

Hooray! Hooray! We are home WITH CEDIE! I was finally able to convience the doctors that we (her family and her nurses) could take better care of Cedie at home and she was less likely to get other bugs if she was in her own house.

They were able to wean her O2 back down to room air late yesterday afternoon. They never had to turn her breathing rate back on or increase her PEEP.

Apparently, thanks to the 3 RSV shots we have already gotten this RSV season, she has a mild case of RSV. This virus can (and usually does) do much worse things to these kiddos with weak lungs. They kept expecting Cedie to get worse but God was with her and knew we really needed her home for the holidays this year.

We were sent home with a warning that it could still get worse so we have to take it easy, monitor her closely, can't get her out, and we have to watch any sick people who might have contact with her.

Any how, we are so thankful for everyone's prayers. We thank God for making this a mild case and giving Cedie's body the strength to fight it so well on her own.

Also, big thanks to Evan's and Eva's mommies for the posts on their blogs that mentioned Cedie. You are both so sweet. I think this network of Cedie, Max, Eva, Evan, and Ben is so great. All 5 of these CHARGEr's are in the same age group and its neat to see how varied this most complicated syndrome can be through each child's story. I gain so much support from each of these families and I count them all as friends even though we've never met.