Thursday 6/8/06- Busy Day

We had a 10am appointment downtown at Lebonheur today. Her nurse and I packed everything up and left the house with Cedie at 9am. We were signing in at the clinic at 9:45. We waited for 1 & 1/2 hrs in the waiting room, then got put in a room to wait some more. They checked her CO2 (looked great) and her O2 sats (not as great) and they checked her weight/BP/Temp. Her weight was 6.65 kg (her discharge papers said she was 7.3 last Wed). The pulmonologist saw her and he seemed pleased with her condition. He didn't make any changes and said to come back on the 22nd. Our discharge order for nursing was 24/7 for 2 weeks and then 16 hours thereafter. I asked the doctor today if we could extend the 24/7 because of how involved Cedie's care is but he isn't prepared to do that at this time. We left out of there just before 2pm. Next time we will take us a lunch!

Two of Cedie's nurses from TCU came to see her today. We all had a nice visit. It was so good to see them again. They have been a major part of our lives for the last year.

Tonight I found out my nurse will be late. She won't be arriving until 12am or so. So Chris and I are taking the 7-12 shift tonight. So far so good. Hopefully it will be a good night.